Celine Dion stepped away from performing last year as
She fought against “stiff-person” syndrome, a rare autoimmune condition.
Dion’s sister, Claudette Dion, has revealed that the singer suffers from a uncommon neurological condition that hinders her mobility and vocal abilities. According to Claudette, Dion has limited control over her muscle movements.
Claudette, 75, shared with French publication 7 Jours that there are individuals who have given up hope due to the unfamiliarity of the disease.
Claudette is not only a musician but also holds the positions of CEO and spokesperson for Fondation Maman Dion, a charitable group established by their mother to assist underprivileged children.
opened up about her diagnosis in December 2022, saying she had to reschedule tour dates that had already been postponed due to the COVID-19 pandemic. In May 2023, she announced she was
postponing the remaining shows of her global concert series
Because of her medical conditions.
Claudette said their dream is for Dion to return to the stage, but it is uncertain. “Vocal cords are muscles, but so is the heart. That’s what gets to me. Because it’s one in a million case, scientists don’t have that much research on the topic, because it didn’t affect that many people.”
Dion has been required to
delay concert dates prior to2014 was the year she revealed she was fighting a condition that caused swelling in her throat muscles and she also had to take care of her husband, who was diagnosed with cancer.)
In 2016, Dion announced that it had been a challenging and taxing period for her family. As a result, she had to delay performances for her residency at Caesars Palace and cancel her tour dates in Asia.
According to the National Institutes of Health, Stiff-person syndrome impacts 1 in every million individuals, although it may be more prevalent than previously thought. It is twice as common in women and is often linked to other autoimmune disorders such as Type 1 diabetes and vitiligo. Studies indicate that it may be triggered by an abnormal autoimmune reaction in the brain and spinal cord, but the exact cause is not yet known.
Medications that can ease muscle spasms, along with anti-anxiety medications, are beneficial in managing the disease. Research has demonstrated that intravenous immunoglobulin (IVIG) treatment, which involves administering natural antibodies from healthy individuals, can also help decrease stiffness.
Dion, a Canadian artist who has had a long-standing residency, made a rare public appearance in November to greet members of the Montreal Canadiens NHL team in Las Vegas.